Before I Had Diabetes, Dr E Helped Me Get Pregnant!
I was diagnosed with PCOS (polycystic ovary syndrome) when I was a teen. While going through the difficult process of trying to get pregnant years later, I found a great doctor at UCSD who was doing PCOS research. Research at the time showed that PCOS was an insulin processing disorder (insulin resistance), and the way to treat it best was with some of the same medications used to treat type 2 diabetes. So I found my way to Dr. Edelman, who had been my parents’ endocrinologist many years before.
Dr. E prescribed Rezulin (troglitazone) for me. This, in combination with a modified low-carb diet, helped me lose weight and react better to the fertility medication I was taking. Through a combination of Dr. E’s support, my PCOS doctor’s research, and the fertility treatments, I was able to conceive twins who were born in 2001. I have always wholeheartedly credited Dr. Edelman as being the main reason I was able to have children!
My Path to Mounjaro
Fast forward to 2020. I was diagnosed with type 2 diabetes when my labs showed my A1c was 10, and my primary care doctor immediately started me on metformin. I wasn’t having a ton of success over time though, so eventually he added in Januvia. Sadly that didn’t do much for me overall either.
In 2022 I emailed Dr. Edelman with this information and asked for his help. He immediately sent me TCOYD® videos, information about all the new medications like GLP-1s and SGLT2s, and a recommendation to stop seeing my primary care doctor and get myself to an endocrinologist. I followed his advice, and in July of 2022, my new endocrinologist started me on Mounjaro.
I started at a dose of 2.5 mg and slowly worked my way up. I spent several months at each dose before going up to the next dose. I was on 10 mg for a long time, and I’ve been on 12.5 mg now for 5-ish months. I doubt I’ll go up to 15 mg, but never say never!
Managing Side Effects
With each dosage I’ve had some of the typical side effects such as diarrhea and vomiting. In the beginning they were more frequent and there were times I took Zofran to help. Of late I’ve had some episodes of constipation, so I take magnesium O7 which helps tremendously. This is something I learned from my Mounjaro Facebook group – we’re always sharing tips on how to control side effects.
I definitely have had appetite suppression on Mounjaro. It was more pronounced in the beginning, but I still have a lot. The “food noise” as I call it is a lot less frequent than before I started the medication. Eating is no longer always on my mind.
I have not made a complete 180 in my eating habits and I probably need to get better at it, but I do try to eat fewer carbs. I do not believe in complete deprivation of any foods, as I don’t think that’s sustainable.
My Results on Mounjaro after 18 Months
Since I started on Mounjaro, my A1c has steadily declined, and my most recent labs showed an A1c of 5! I have never been so happy in my life! My weight also has decreased from an all-time high of 204 on my 5’1” frame (probably in the mid-upper 170s when I started Mounjaro), to weighing in last week at 120. My endocrinologist is extremely satisfied with how well this medication has worked for me, and also has said she has no intention of ever taking me off of it as long as I tolerate it well. She may lower the dosage to see how I do, but for now I’m continuing on the 12.5 mg dosage and doing great.
I think Mounjaro has been the primary reason for my weight loss and my A1c normalizing. I’m not sure what would happen if I stopped taking it, and I hope I don’t have to find out any time soon! My self-control is not where it should be, and I think the “food noise” would come back with a vengeance. The weight loss has been a happy side effect, but the primary goal for me was to lower my A1c. I do think they go hand in hand though. As one improves, so does the other. I am just so thankful for knowing the right people to contact and for having a current endocrinologist who listens to me and understands what I want and need.